Wednesday, January 28, 2009
Bostyn's Health
As most of you know, Bostyn has severe food allergies that include corn, wheat, soy, tomato, cow's milk, goat's milk, melon, eggs and peanuts...that we know of! This has obviously been quite and experience and now that she's two it seems these are really catching up to her! I took her in to her new doctor for a well child visit on December 22nd and we learned that she was down from 24 lbs (in the lower 10th percentile) to only 20 lbs (making her a failure to thrive baby). She developed a deep cough about a week ago, so I took her to the doctor again on Jan. 23rd (one month later) and she was down another 2 lbs! The doctor took immediate action and got her in for some testing yesterday (tuesday, jan 27th). She had several tests run including a sweat test for cystic fibrosis, blood work and a chest xray. She was such a little trooper! We were there for over two hours while she got poked, proded and had electric currents shot thru her arms and she only cried once! It was at the very end when they poked her with a needle and she started saying through the tears "I wanna go outta town"...I didn't blame her, she deserves a vacation lol! We got mostly negative results back (thank goodness), which I firmly believe is due in large part to all of the amazing friends and family who had been praying for her (thank you!!!!)! We did find that she is anemic, has high liver enzymes and white blood cells (which the dr. thinks is most likely due to her allegies) and is nutritionally deficient (something we already knew). Since turning two her nutritional needs have changed from needing more fat in her diet to needing more protein and since animals eat corn, wheat and soy (food Bostyn is allergic to) meats are out of the question and of course eggs, nuts and soy products are ruled out as well. So the adventure has just begun as we head to KC next weekend to visit the children's hospital there. We will be seeing a dr who specialized in pediatric allergies and we are hoping to get many of our questions answered as to how to get our little angel the nutrients she needs!
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Hey, anytime you want extra prayer for something specific let me know, so I can! I guess now that I'm a fan I can keep up with you, and everyone. I know you have a lot going on but I wanted to let you know I'm still here.
ReplyDeleteHi Donald and Nikki,
ReplyDeleteHow great is this!! I already feel closer to all of you. A great big hug for Bostyn.
Love always,
Grandma Carole